I am beginning to feel that I actually don’t know my body.
My body knows me now
My body owns me
My body is like a ball and chain on my ankle depriving me of all the things I love to do
My body exerts it’s control over me
Like a bullet train on tracks
I feel powerless
I’m at the point where I’ve been trying everything in order to feel better
But I’m exhausted
Shooting pain randomly
Mind numbing burning pain
It’s almost as if I can feel my uterus wrapping itself around my body
And strangling me
This is misery
This is depression
Because my body limits what I want to do
Hearing others ask “why the cane”
And just saying chronic illness
Because one, they don’t really want to know
And two if I told them, it would be like speaking another language
Because not that many people have heard of my disease
Some of them, doctors
Have you tried Tylenol?
….. sigh
They don’t even have the ability to wrap their mind around my life
Stop complaining
When I was your age I …..
Believe me, I could complain a lot more
Most of my complaints are comedic or ironic
But some of them point out the reality of ableism
They point out the isolation that disability often comes with
They point out the broken door openers
They point out uncomfortable chairs
They point out how much I feel like I’m a burden to my friends
To my family
To my school
They point out that if I just had a frogs body, I would live in an ideal world